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hypermobile Ehlers Danlos syndrome

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Read more about the article vascular compressions: plot twist
Ashlee Suker / chronic illness / fatigue / hypermobile Ehlers Danlos syndrome / MALS / median arcuate ligament syndrome / nutcracker syndrome / pelvic congestion syndrome / sunshine journal / vascular compression

vascular compressions: plot twist

A few weeks ago I started writing a blog about this whole waiting game. It didn't get completed due to dealing with life, not feeling well, and time. Time is…

4 Comments
June 29, 2024
Ashlee Suker / CardioVascular Health Clinic / hEDS / hypermobile Ehlers Danlos syndrome / MALS / pelvic congestion syndrome / surgery / vascular compression / venogram

vascular compressions: post-embolization life

What day is it?I've been a bit MIA lately, so my blog is a tad behind. I'm going to try and incorporate some dates so we can all follow along…

0 Comments
May 4, 2024
Ashlee Suker / hEDS / hypermobile Ehlers Danlos syndrome / MALS / median arcuate ligament syndrome / nutcracker syndrome / pelvic congestion syndrome / vascular compression / venogram

vascular compressions: pelvic congestion syndrome pt 2

I'm slowing coming out of my anesthesia fog from my venogram. The doctor comes in and tells me, "It was worse than I thought... " He then explains some of…

0 Comments
April 23, 2024
angiogram / Ashlee Suker / Dr. Sherisa Warren / hEDS / hypermobile Ehlers Danlos syndrome / hyperprolactinoma / MALS / pelvic congestion syndrome / sunshine journal / vascular compression / venogram

vascular compressions: pelvic congestion syndrome

I think it’s been established that things have been a bit chaotic in our household. Even with these challenges going on it’s so easy to see how blessed we still…

0 Comments
April 21, 2024
Ashlee Suker / Austin / hypermobile Ehlers Danlos syndrome / Magnolia Market / median arcuate ligament syndrome / Texas / Waco TX

Quick trip to Texas! post-angiogram

We arrive at Magnolia Market and it's love at first sight, just as I imagined. I'm fully aware that it's a tourist haven, but I don't care. I feel happy…

1 Comment
April 7, 2024
angiogram / Ashlee Suker / CardioVascular Health Clinic / Dr. Sherisa Warren / fatigue / hEDS / hypermobile Ehlers Danlos syndrome / MALS / median arcuate ligament syndrome / Oklahoma City / vascular compression

vascular compressions: post-angiogram

Dr. Warren has just told me that I have severe MALS. I have very little comprehension of this other than hearing what she said. I was feeling a bit distracted…

0 Comments
April 7, 2024
angiogram / Ashlee Suker / CardioVascular Health Clinic / chronic illness / Dr. Sherisa Warren / EDS / hEDS / hypermobile Ehlers Danlos syndrome / MALS / vascular compression / venogram

vascular compressions: angiogram

The journey to Oklahoma City goes as well as a 10+ hour drive can. After our first stop in Albert Lea at their fantastic gas station, Violet declared it the…

2 Comments
April 4, 2024
Ashlee Suker / chronic illness / fatigue / hEDS / hypermobile Ehlers Danlos syndrome / MALS / sunshine journal / venogram

vascular compressions: turn of events pt 1

I had wondered if the doctor realized he called me on a Friday evening (3/15) and it was now in fact, the weekend. We left on a "the schedulers will…

0 Comments
April 1, 2024
Ashlee Suker / chronic illness / EDS / hEDS / hypermobile Ehlers Danlos syndrome / pain / vascular compression / venogram

vascular compressions: the waiting continued

Met for supper with the fam to celebrate Tyson's birthday!I left off last post with me waiting to get my venogram scheduled. Friday, March 15th, the Interventional Radiologist from Woodbury…

0 Comments
March 31, 2024
Ashlee Suker / chronic illness / hEDS / hypermobile Ehlers Danlos syndrome / MALS / mental health / sunshine journal / vascular compression

vascular compressions: the waiting

Nice little family sunset walkFebruary somehow managed to feel like the longest month of the year, despite the fact that it's the shortest. I would have thought that being continuously…

0 Comments
March 15, 2024
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