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Ashlee Suker / CardioVascular Health Clinic / celiac plexus block / Dr. Sherisa Warren / hEDS / median arcuate ligament syndrome / nutcracker syndrome / sunshine journal / vascular compression

vascular compressions: one step closer to surgery

Monday, April 22, 2024, I had my call with Dr. Warren. We have long anticipated this call to pull together all the work I've done over the last months. My…

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May 15, 2024
Ashlee Suker / CardioVascular Health Clinic / hEDS / hypermobile Ehlers Danlos syndrome / MALS / pelvic congestion syndrome / surgery / vascular compression / venogram

vascular compressions: post-embolization life

What day is it?I've been a bit MIA lately, so my blog is a tad behind. I'm going to try and incorporate some dates so we can all follow along…

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May 4, 2024
Ashlee Suker / hEDS / hypermobile Ehlers Danlos syndrome / MALS / median arcuate ligament syndrome / nutcracker syndrome / pelvic congestion syndrome / vascular compression / venogram

vascular compressions: pelvic congestion syndrome pt 2

I'm slowing coming out of my anesthesia fog from my venogram. The doctor comes in and tells me, "It was worse than I thought... " He then explains some of…

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April 23, 2024
angiogram / Ashlee Suker / Dr. Sherisa Warren / hEDS / hypermobile Ehlers Danlos syndrome / hyperprolactinoma / MALS / pelvic congestion syndrome / sunshine journal / vascular compression / venogram

vascular compressions: pelvic congestion syndrome

I think it’s been established that things have been a bit chaotic in our household. Even with these challenges going on it’s so easy to see how blessed we still…

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April 21, 2024
angiogram / Ashlee Suker / CardioVascular Health Clinic / Dr. Sherisa Warren / fatigue / hEDS / hypermobile Ehlers Danlos syndrome / MALS / median arcuate ligament syndrome / Oklahoma City / vascular compression

vascular compressions: post-angiogram

Dr. Warren has just told me that I have severe MALS. I have very little comprehension of this other than hearing what she said. I was feeling a bit distracted…

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April 7, 2024
angiogram / Ashlee Suker / CardioVascular Health Clinic / chronic illness / Dr. Sherisa Warren / EDS / hEDS / hypermobile Ehlers Danlos syndrome / MALS / vascular compression / venogram

vascular compressions: angiogram

The journey to Oklahoma City goes as well as a 10+ hour drive can. After our first stop in Albert Lea at their fantastic gas station, Violet declared it the…

2 Comments
April 4, 2024
Ashlee Suker / chronic illness / fatigue / hEDS / hypermobile Ehlers Danlos syndrome / MALS / sunshine journal / venogram

vascular compressions: turn of events pt 1

I had wondered if the doctor realized he called me on a Friday evening (3/15) and it was now in fact, the weekend. We left on a "the schedulers will…

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April 1, 2024
Ashlee Suker / chronic illness / EDS / hEDS / hypermobile Ehlers Danlos syndrome / pain / vascular compression / venogram

vascular compressions: the waiting continued

Met for supper with the fam to celebrate Tyson's birthday!I left off last post with me waiting to get my venogram scheduled. Friday, March 15th, the Interventional Radiologist from Woodbury…

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March 31, 2024
Ashlee Suker / chronic illness / hEDS / hypermobile Ehlers Danlos syndrome / MALS / mental health / sunshine journal / vascular compression

vascular compressions: the waiting

Nice little family sunset walkFebruary somehow managed to feel like the longest month of the year, despite the fact that it's the shortest. I would have thought that being continuously…

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March 15, 2024
Ashlee Suker / challenge / chronic illness / CTE / fatigue / hEDS / hypermobile Ehlers Danlos syndrome / MALS / sunshine journal / vascular compression

vascular compressions: another day. another test.

Last week I crossed another test off the list... well sort of. I went in to do an upper GI series with barium. She got me all situated with my…

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February 9, 2024
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